Tuesday, March 29, 2011

Not in the box

Or at least I must be out of the box, b/c I sure as heck don't fit in anyone else's box.  I love how I heard once of how ms affects a person, I'm 'just aging prematurely'.  Yeah, okay, I can see that... so what, am I an 80 year old running around (well trying to anyway, lol) in a 30 year old's body?  I used to do about everything with horses out there; jumping, chasing cattle and harnessing and driving drafts... but now I don't hardly dare go above a walk.  Hopefully I can get that turned around this summer though.  I'd gotten up to cantering b4 getting pregnant, so I know what and how to do it, now with the baby, it's just a matter of if I'll be able to get out enough to start my in saddle exercise program.  Another thing that doesn't make sense from my vent yesterday... why would they send me to a certification class is they already had me in my temporary part time position.  Oh well, it's given me the tools to help myself, and contribute more to kids learning how to ride, when the opportunity presents itself. 

Being a mother puts you out of a 'normal' box anyway, but then to be a mother with limitations, hmph.  So, since my walking isn't so hot, I 'drive' my baby boy around using a power chair.  So far, with his mattress on the highest level, I can still get him in and out of his crib alright.  But, we are looking at putting hinges on the crib side somewhere so I won't have to try and stand the baby gets older, and bigger.
http://www.disabledparents.net/crib.html

Can you go out and buy one of those, not that I've found.  Good thing my husband is a carpenter!  Now to deside if we want to copy the one above, or make a side that fold down... which my PT thought the baby could crawl out on....  Hmm.... right, we'll see.  My oldest is 9, and the baby's less than 6 months old right now, talk about a learning curve!  I've found I've forgotten about all that I learned with the first, if I ever did truly 'learn' anything.  Wow have things changed, namely the car seats!  I need to get myself strong enough to be able to put the giant stroller the car seat hooks into, in the trunk, and then I can take the little guy out into the world and stop having PT in my home, which is strange, b/c the usually work with the elderly and I think they don't quite know what to do with a younger momma... though I think they enjoy seeing the baby when they come out.

Fine for now... mind's racing with 'in the future's, which reminds me, I wonder if we have room for a piano and if I can still play with my 'fuzzy' fingers...?

Monday, March 28, 2011

Frustration...

Home with BOTH kids today and it seems that if one isn't upset, the other is.  Got a reprieve now with the littlest still sleeping and the oldest hopefully cleaning her room, she's down there anyway.  So, still trying to make up my mind if I want to continue to journal on line and looked at my intro and saw my statement that this would include my frustrations.  #1  Why would a company - that operates on Christian principles mind you - pay to have you move the the area to do a job and dump you the minute you realize you have a chronic disease... that's NOT affecting your job at the time, and when you ask for accommodations to ensure you can survive their crazy work schedule, they don't even look for another position within the company, just, 'Good bye.'  #2 You go to a therapeutic riding center b/c you see what is happened(ing) to your riding abilities and are sensing a strong benefit with riding... just could use some help getting back what you had and with knowing specific exercises to help your condition.  They don't know what to do with you b/c you're a lot better off than any of their other clients and already know how to ride.  #3 Handicapped parking.  Ever notice the handicapped parking spot is not the closest to the door?  Anything to save $ right?  I know I have more that, who doesn't, right? lol  But I know the boy will be up soon, and I should get off the computer.

Monday, March 21, 2011

Multitasking

Well, this is my first post, and I'll share the funny things you can do at the same time.  I got tired of feeding Cody every time while in my chair, so I've learned (without him of course first!) how to transfer myself into the rocker to feed him, whatever.  I was sitting there this afternoon and started thinking of my tired, weakened legs.  Then one of the PT exercises I did when I'd broken my foot in HS came to mind - 'writing' the alphabet with your feet.  SO, I now have another new thing to do during the day, 'foot writing' while Cody eats at least once a day.

This will be added to the elliptical and stretching I am going to get more consistent with.  :-)